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https://www.walnutport.com/former-lehigh-valley-coachs-death-from-a-rare-disease-in-2004-led-to-a-local-support-system-now-its-expanded-to-be-nations-first-statewide-network/
Former Lehigh Valley coach’s death from a rare disease in 2004 led to a local support system; now it’s expanded to be nation’s first statewide network
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